{"id":20864,"date":"2026-10-20T19:21:50","date_gmt":"2026-10-20T23:21:50","guid":{"rendered":"http:\/\/www.defensoria.gob.ve\/?p=20864"},"modified":"2026-10-20T19:21:53","modified_gmt":"2026-10-20T23:21:53","slug":"defensoria-del-pueblo-impulsara-articulacion-interinstitucional-para-satisfacer-peticiones-de-pacientes-hemofilicos","status":"publish","type":"post","link":"http:\/\/www.defensoria.gob.ve\/?p=20864","title":{"rendered":"Defensor\u00eda del Pueblo impulsar\u00e1 articulaci\u00f3n interinstitucional para satisfacer peticiones de pacientes hemof\u00edlicos"},"content":{"rendered":"\n<p>La Defensor\u00eda del Pueblo acord\u00f3 la elaboraci\u00f3n de un informe t\u00e9cnico y la convocatoria a una mesa de trabajo interinstitucional para atender las solicitudes planteadas por los miembros de la Asociaci\u00f3n Venezolana para la Hemofilia (AVH).&nbsp;<\/p>\n\n\n\n<p>En este sentido el Delegado del \u00c1rea Metropolitana de Caracas, Bruno Gallo, inform\u00f3 que la iniciativa surgi\u00f3 luego de reunirse con un grupo de pacientes, quienes informaron que la mencionada asociaci\u00f3n, con 54 a\u00f1os de trayectoria comunitaria, agrupa y atiende en todo el pa\u00eds a 5.203 personas diagnosticadas con esta condici\u00f3n.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img fetchpriority=\"high\" decoding=\"async\" width=\"2560\" height=\"1920\" src=\"http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1232-scaled.jpg\" alt=\"\" class=\"wp-image-20865\" style=\"width:493px;height:auto\" srcset=\"http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1232-scaled.jpg 2560w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1232-768x576.jpg 768w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1232-1536x1152.jpg 1536w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1232-2048x1536.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n\n\n\n<p>Durante el encuentro, los representantes de la AVH hicieron hincapi\u00e9 en el suministro de medicamentos para tratar la enfermedad y solicitaron al \u00f3rgano defensorial la debida mediaci\u00f3n para que se mejore la distribuci\u00f3n de estos tratamientos de alto costo.&nbsp;<\/p>\n\n\n\n<p>Frente a este panorama, se articular\u00e1 una mesa t\u00e9cnica multidisciplinaria en la que se prev\u00e9 la participaci\u00f3n del Centro Nacional de Hemofilia, el Instituto Venezolano de los Seguros Sociales (IVSS) a trav\u00e9s de las Farmacias de Alto Costo, el Ministerio para la Salud, la corporaci\u00f3n de compras del Estado y la Asociaci\u00f3n Venezolana para la Hemofilia.<\/p>\n\n\n\n<p>Cabe destacar que los equipos defensoriales en todo el pa\u00eds han realizado visitas a los centros de atenci\u00f3n de pacientes hemof\u00edlicos con la finalidad de conocer las condiciones que se prestan en estos lugares y luego realizar las recomendaciones debidas a cada caso.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" width=\"2560\" height=\"1920\" src=\"http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1321-scaled.jpg\" alt=\"\" class=\"wp-image-20868\" style=\"width:490px;height:auto\" srcset=\"http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1321-scaled.jpg 2560w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1321-768x576.jpg 768w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1321-1536x1152.jpg 1536w, http:\/\/www.defensoria.gob.ve\/wp-content\/uploads\/2026\/10\/IMG_1321-2048x1536.jpg 2048w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>La Defensor\u00eda del Pueblo acord\u00f3 la elaboraci\u00f3n de un informe t\u00e9cnico y la convocatoria a una mesa de trabajo interinstitucional para atender las solicitudes planteadas por los miembros de la&hellip; <\/p>\n","protected":false},"author":18,"featured_media":20867,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[15,11,19,18],"class_list":["post-20864","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-regionales","tag-caracas","tag-defensoria","tag-defensoria-del-pueblo","tag-venezuela"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - 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